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Retinoblastoma is a rare cancer in the eye. It begins in the retina. The retina is the thin membrane on the back of the eye. It senses light and color and sends messages to the brain so that we can see.
Unilateral retinoblastoma is the most common retinoblastoma. It affects only 1 eye. Bilateral retinoblastoma affects both eyes. Most retinoblastoma stays in the eye. If it is not treated, it can spread to other parts of the body.
Retinoblastoma is rare. It is usually diagnosed in children under age 3. Children over age 5 rarely develop retinoblastoma.
Find out more about retinoblastoma on the Together by St. Jude™ online resource.
Retinoblastoma treatment depends on the patient’s age and how much the disease has spread. Treatment may include:
St. Jude offers clinical trials and cancer research studies for children, teens, and young adults with retinoblastoma and other solid tumors.
Study goal:
The main purpose of this study is to find out the best way to use the CRADLE app to identify leukocoria in children with retinoblastoma, congenital cataracts and glaucoma.
Age:
7 years old or younger
Study goal:
The main goal of this research study is to help us learn how to better treat pain and symptoms in children going through chemotherapy cancer treatment.
Age:
8 to 18 years old
Study goal:
To find out whether repotrectinib is safe to use in children and young adults and whether it might work against tumors.
Age:
Up to 25 years old
St. Jude provides the highest quality of care for patients with retinoblastoma:
More reasons to choose St. Jude for care include:
Patients accepted to St. Jude must have a disease we treat and must be referred by a physician or other qualified medical professional. We accept most patients based on their ability to enroll in an open clinical trial.
Call: 1-888-226-4343 (toll-free) or 901-595-4055 (local) | Fax: 901-595-4011 | Email: referralinfo@stjude.org | 24-hour pager: 1-800-349-4334