About this study
Children with sickle cell disease (SCD) are more likely to have problems learning at school. When they first enter school, they may not be ready. They may have problems knowing words, and numbers. Or they may lack the self-control they need to succeed.
This study will test a school readiness program that St. Jude made for caregivers or parents of young children with sickle cell disease. This program is the adapted Kids in Transition to School (KITS) intervention study. This program helps young children and their caregivers prepare for kindergarten. This program will try to help parents work with their preschoolers to learn better and teach them self-control skills before they enter school.
In the first part of the study, researchers will test the program with a small group of
caregivers to see how they view the program and get their feedback.
In the second part of the study, a new group of caregivers will either:
- Take part in the intervention program with virtual group classes once a week for 8 weeks. We will give the caregivers age-appropriate books and school supplies for their children.
OR - Do the usual preparation for school
The caregivers and their children will be tested before and after they take part in the program or standard preparation for school.
Purpose of this clinical trial
This study will help us find out how to make the intervention program better and test it with a larger group of caregivers and their children.
Eligibility overview
To take part in this study, you must be:
- Diagnosed with sickle cell disease
- Enrolled in the St. Jude Sickle Cell Clinical Research Intervention Program (SCCRIP)
- Ages 4–6
- English as the primary language