About this study
We want to study how children and adolescents with hemophilia think and feel.
We will look at:
- How hemophilia affects their attention span
- How often they have anxiety
- How well they understand written information
- How well adolescents move to adult care
- How caregivers view their children’s school experiences
Patients in this study will:
- Take tests to study their attention and understanding
- Complete an activity that will show how well they understand health information
- Answer questions about moving to adult care (for patients age 12 and up)
The caregiver will:
- Answer questions about the patient’s background
- Complete an activity about health information
- Take a survey about the patient’s school experiences
Purpose of this clinical trial
This study will help us understand how hemophilia affects how patients think, feel, and experience school. The study will also tell us how well patients and their families understand health information. This research will help us improve our care for hemophilia patients. It will also help us learn how to help make the move to adult care easier.
Eligibility overview
To take part in this study, you must be:
- A St. Jude hemophilia patient
- 6–18 years old
- An English speaker