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HEMOCOG: Neurocognitive Functions, Health Literacy, and Transition Readiness in Pediatric Hemophiliacs

About this study

We want to study how children and adolescents with hemophilia think and feel.

We will look at:

  • How hemophilia affects their attention span
  • How often they have anxiety
  • How well they understand written information
  • How well adolescents move to adult care
  • How caregivers view their children’s school experiences

Patients in this study will:

  • Take tests to study their attention and understanding
  • Complete an activity that will show how well they understand health information
  • Answer questions about moving to adult care (for patients age 12 and up)

The caregiver will:

  • Answer questions about the patient’s background
  • Complete an activity about health information
  • Take a survey about the patient’s school experiences

Purpose of this clinical trial

This study will help us understand how hemophilia affects how patients think, feel, and experience school. The study will also tell us how well patients and their families understand health information. This research will help us improve our care for hemophilia patients. It will also help us learn how to help make the move to adult care easier.

Eligibility overview

To take part in this study, you must be:

  • A St. Jude hemophilia patient
  • 6–18 years old
  • An English speaker

Request a referralLearn about clinical research

The above information is intended to provide only a basic description about a research protocol that may be currently active at St. Jude. The details made available here may not be the most up-to-date information on protocols used by St. Jude. To receive full details about a protocol and its status and or use at St. Jude, a physician must contact St. Jude directly.

Overview

Full title:

Examining Cognition, Health Literacy, Transition Readiness, and Educational Experiences in Patients with Hemophilia

Study goal:

This study will help researchers understand how hemophilia affects how patients think, feel, and experience school.

Diagnosis:

Hemophilia

Age:

6 to 18 years old

Clinical trials categories:

Blood Disorders Hemophilia

For physicians and researchers

Patients accepted to St. Jude must be referred by a physician or other qualified medical professional. Learn how St. Jude can partner with you to care for your patient.

 

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