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More than 1,600 patients from the Southern, Eastern, and Midwest regions of the United States currently take part in this study.
When the study began in 2014, we followed participants up to age 25. To capture data from the full lifespan of patients with sickle cell disease, we expanded the age range to enroll and follow participants from birth through adulthood.
First Author | Title | Journal | Year |
---|---|---|---|
Nicole Alberts, PhD | Agreement between youth and caregiver report of pain and functioning in pediatric sickle cell disease: PedsQL sickle cell disease module | Pain | 2024 |
Narek Israelyan, MD | RH genotypes and red cell alloimmunization rates in chronically transfused patients with sickle cell disease: A multisite study in the USA | Transfusion | 2024 |
Andrew Heitzer, PhD | Catechol-O-methyltransferase gene (COMT) is associated with neurocognitive functioning in patients with sickle cell disease | Current Research in Translational Medicine | 2023 |
Tarun Aurora, MD |
Journal of Pediatrics |
2023 |
|
Justin Kirkman, MD, PhD |
Genetic Variation and Sickle Cell Disease Severity: A Systematic Review and Meta-Analysis |
JAMA Network |
2023 |
Chibuzo Ilonze, MD |
Blood Cancer |
2024 |
|
Yan Zheng, MD, PhD |
Blood Advances |
2023 |
|
Joshua Semko, MA |
Pediatric Blood & Cancer |
2023 |
|
Parul Rai, MD |
American Journal of Hematology |
2023 |
|
Nidhi Bhatt, MD |
Pediatric Blood & Cancer |
2023 |
|
Andrew Heitzer, PhD |
Social Determinants of Neurocognitive and Academic Performance in Sickle Cell Disease |
Pediatric Blood & Cancer |
2023 |
Kenneth Ataga, MD |
Sex differences in progression of kidney disease in sickle cell disease |
Haematologica |
2022 |
Kenneth Ataga, MD |
Blood Advances |
2022 |
|
Rima Zahr, DO |
Enuresis and Hyperfiltration in Children with Sickle Cell Disease |
Journal of Pediatric Hematology Oncology |
2022 |
Hamda Khan, MA |
Sickle cell disease and social determinants of health: A scoping review |
Pediatric Blood & Cancer |
2022 |
Kristen Howell, PhD |
Expert Review of Hematology |
2022 |
|
Cara Morin, MD, PhD |
Blood |
2022 |
|
Janaka Liyanage, PhD |
Mathematics |
2022 |
|
Parul Rai, MD |
Haematologica |
2022 |
|
Heidi Heyman, MD |
COVID-19 infection and pain in adolescents with sickle cell disease: A case series |
eJHaem |
2022 |
Jennifer Longoria, PhD |
Pediatric Blood & Cancer |
2022 |
|
Andrew Heitzer, PhD |
Internalizing Symptoms in Adolescents With Sickle Cell Disease |
Journal of Pediatric Psychology |
2022 |
Ana Trpchevska, MS; Andrew Heitzer, PhD |
Adaptive functioning in children and adolescents with sickle cell disease |
Journal of Pediatric Psychology |
2022 |
Andrew Heitzer, PhD |
Fetal hemoglobin modulates neurocognitive performance in sickle cell anemia |
Current Research and Translational Medicine |
2022 |
Melissa Cregan, DO |
Prevalence of neuropathic pain in adolescents with sickle cell disease: A single-center experience |
Pediatric Blood & Cancer |
2022 |
Kenneth Ataga, MD |
Haematologica |
2021 |
|
Andrew Heitzer, PhD |
Neurocognitive functioning in preschool children with sickle cell disease |
Pediatric Blood & Cancer |
2021 |
Andrew Heitzer, PhD |
Social Determinants of Health and Neurocognitive Functioning in Sickle Cell Disease |
Pediatric Blood & Cancer |
2021 |
Jerlym Porter, MD, PhD |
Nocturnal Enuresis in Sickle Cell: Sociodemographic, Medical, and Quality of Life Factors |
Journal of Pediatric Psychology |
2021 |
Kristen Howell, PhD |
Pediatric Blood & Cancer |
2021 |
|
Jeffrey Lebensberger, DO |
Haematologica |
2021 |
|
Grace Champlin, MD |
Experimental Biology and Medicine |
2021 |
|
Jeremie Estepp, MD |
British Journal of Haematology |
2021 |
|
Sara Rashkin, PhD |
British Journal of Haematology |
2021 |
|
Evadnie Rampersaud, PhD, and Guolian Kang, PhD |
A Polygenic Score for Acute Vaso-Occlusive Pain in Pediatric Sickle Cell Disease |
Blood Advances |
2021 |
Andrew Heitzer, PhD |
British Journal of Haematology |
2021 |
|
Li Cheng, PhD; Yichao Li, PhD |
Single-nucleotide–level mapping of DNA regulatory elements that control fetal hemoglobin expression |
Nature Genetics |
2021 |
Mary Keenan, MS |
Empirically Derived Health-Related Quality of Life Profiles in Pediatric Sickle Cell Disease |
Journal of Pediatric Psychology |
2021 |
Anjelica Saulsberry-Abate, MD |
Cognitive Performance as a Predictor of Health Care Transition in Sickle Cell Disease |
British Journal of Haematology |
2021 |
Parul Rai, MD |
Blood Advances |
2021 |
|
Nicole Alberts, PhD |
Clinical Journal of Pain |
2021 |
If you are not yet in this study but would like to join, email us at sccrip@stjude.org.
: If you take part in SCCRIP, please update your contact information so we can stay connected.