Selected Publications
Howell KE, Kayle M, Smeltzer MP, Nolan VG, Gurney JG, Mathias JG, Nelson M, Anderson S, Porter JS, Shah N, Hankins JS. Gaps during pediatric to adult care transfer escalate acute resource utilization in sickle cell disease. Blood Advances 8:3679-3685, 2024.
Hardy SJ, Crosby LE, Porter JS, Sil S, Valrie CR, Jonassaint CR, Bediako SM, Andrews C, Rivera M, Woolford T, Colman-Cowger VH. Assessing psychosocial risk and resilience to support readiness for gene therapy in sickle cell disease: A consensus statement. JAMA Network Open 7:e2429443, 2024.
Heitzer A, Longoria J, Porter J, MacArthur E, Potter B, Ding J, Gossett J, Kang G, Hankins JS. Internalizing symptoms in adolescents with sickle cell disease. Journal of Pediatric Psychology 48:91-103, 2023.
Heitzer AM, Schreiber JE, Pan H, Yuan X, Wang F, Rupff R, Russell K, Wang W, Estepp J, Hankins J, Porter J, Jacola LM. Working memory and school readiness in preschool children with sickle cell disease compared to demographically matched controls. British Journal of Haematology 200:358-366, 2023.
Khan H, Krull M, Hankins J, Wang W, Porter J. Sickle cell disease and social determinants of health: A scoping review. Pediatric Blood and Cancer 70:e30089, 2023.
Heitzer AM, Okhomina VI, Trpchevska A, MacArthur E, Longoria J, Potter B, Raches D, Johnson A, Porter JS, Kang G, Hankins JS. Social determinants of neurocognitive and academic performance in sickle cell disease. Pediatric Blood and Cancer 70:e30259, 2023.
Drennan CN, Pauley JL, Christensen AM, Jacobs TW, Bragg AW, Porter JS, Bourque MS. Pharmacist impact on discharge follow-up education in pediatric oncology outpatient clinics: A quality improvement study. The Journal of Pediatric Pharmacology and Therapeutics,28:262-267, 2023.
Howell KE, Pugh N, Longoria J, Shah N, Kutlar A, Gordeuk VR, King AA, Glassberg J, Kayle M, Treadwell M, Melvin C, Hankins JS, Porter JS. Burden of aging – Health outcomes among adolescents and young adults with sickle cell disease. HemaSphere 7:e930, 2023.
Fair CDV, Betz C, Naranjo D, Porter J, Bailey EC, Korycinski H, Ferris M. Stakeholders’ perspectives on caregiver outcomes for health care transition for adolescents and young adults with special health care needs: A qualitative study. Child: Care Health Development 49:1046-1053, 2023.
Semko J, Longoria J, Porter J, Potter B, Bhatia S, Pan H, Hankins JS, Heitzer A. Examining the influence of pain and fatigue on neurocognitive functioning in adolescents and young adults with sickle cell disease. Pediatric Blood and Cancer e30621, 2023.
Swords CM, Porter JS, Hawkins AJ, Li E, Rowland-Goldsmith M, Koci MD, Tansey JT, Woitowich NC. Science communication training imparts confidence and influences public engagement activity. Journal of Microbiology and Biology Education 24:e00037-23, 2023.
Pizzo A, Porter J, Carroll Y, Burcheri A, Smeltzer MP, Beestrum M, Nwosu C, Badawy S, Hankins JS, Alberts NM. Provider prescription of hydroxyurea in youth and adults with sickle cell disease: A scoping review of prescription barriers and facilitators. British Journal of Haematology 203:712-721, 2023.
Wang W, Brown C, McNaull M, Rogers ZR, Barton M, Dua M, Hankins JS, Gossett JM, Richardson J, Porter JS, Kang G, Estepp J. Intensive hydroxyurea dosing in very young children with sickle cell anemia. Blood Advances 7:6931-6935, 2023.
Hankins JS, Brambilla D, Potter MB, Kutlar A, Gibson RW, King AA, Baumann AA, Melvin CL, Gordeuk VR, Hsu LL, Nwosu C, Porter JS, Alberts NM, Badawy SM, Simon J, Glassberg J, Lottenberg R, DiMartino L, Jacobs S, Fernandez ME, Bosworth H, Kleges LM, Shah N. A multilevel mHealth intervention boosts adherence to hydroxyurea in individuals with sickle cell disease. Blood Advances 7:7190-7201, 2023.
Porter JS, Heitzer AM, Crosby LE, Hankins JS. Social determinants of health: The next frontier for improving care and outcomes in sickle cell disease. Lancet Haematology 10:e571-e573, 2023.
Howell KE, Heitzer AM, Longoria JN, Potter B, Wang WC, Anderson S, Kang G, Hankins JS, Porter JS. Assessment of transition readiness to predict health care utilization during transition to adult care in sickle cell disease. Expert Review of Hematology 15:1063-1072, 2022.
Porter JS, Paladino AJ, Russell K, Rupff R, Griffith J, Mai Y, Zhang H, Hankins JS, Wang WC. Nocturnal enuresis in sickle cell disease: Sociodemographic, medical, and quality of life factors. Journal of Pediatric Psychology, 47:75-85, 2022.
Heitzer AM, Cohen DL, Okhomina VI, Trpchevska A, Potter B, Longoria J, Porter JS, Estepp JH, King A, Henley M, Kang G, Hankins JS. Neurocognitive functioning in preschool children with sickle cell disease. Pediatric Blood & Cancer, 69:e29531, 2022.
Longoria J, Heitzer A, Hankins JS, Trpchevska A, Porter J. Neurocognitive risk in sickle cell disease: Utilizing neuropsychology services to manage cognitive symptoms and functional limitations. British Journal of Haematology, 197:260-270, 2022.
Zahr RS, Ding J, Kang G, Wang WC, Hankins JS, Ataga KI, Lebensburger JD, Porter JS. Enuresis and hyperfiltration in children with sickle cell disease. Journal of Pediatric Hematology/Oncology, 44:358-362, 2022.
Saulsberry-Abate AC, Partanen M, Porter JS, Podila PSB, Hodges JR, King AA, Wang WC, Schreiber JE, Zhao X, Kang G, Jacola LM, Hankins JS. Cognitive performance as a predictor of health care transition in sickle cell disease. British Journal of Hematology, 192:1082-1091, 2021.
Doerfler PA, Sharma A, Porter JS, Zheng Y, Weiss MJ. Hematopoietic stem cell therapies for the first molecular disease. Journal of Clinical Investigation, 131:e146394, 2021.
Viola A, Drachtman R, Kaveney A, Sridharan A, Savage B, Delnevo CD, Coups EJ, Porter JS, Devine KA. Feasibility of medical student mentors to improve transition in sickle cell disease. Journal of Pediatric Psychology, 46:650-661, 2021.
Viola A, Porter J, Shipman J, Brooks E, Valrie C. A scoping review of transition interventions for young adults with sickle cell disease. Pediatric Blood & Cancer, 68:e29135, 2021.
Howell KE, Saulsberry-Abate AC, Mathias J, Porter JS, Hodges JR, Ataga KI, Anderson S, Nolan V, Hankins JS. Transition care continuity promotes long-term retention in adult care among young adults with sickle cell disease. Pediatric Blood & Cancer, 68:e29209, 2021.
Heitzer A, Longoria J, Okhomina V, Wang W, Raches D, Potter B, Jacola L, Porter J, Schreiber J, King A, Kang G, Hankins JS. Hydroxyurea treatment and neurocognitive functioning in sickle cell disease from school age to young adulthood. British Journal of Haematology, 195:256-266, 2021.
Longoria J, Pugh NL, Gordeuk V, Hsu LL, Treadwell M, King AA, Gibson R, Kayle M, Crego N, Glassberg J, Melvin CL, Hankins JS, Porter J. Patient-reported neurocognitive symptoms influence instrumental activities of daily living in sickle cell disease. American Journal of Hematology, 96:1396-1406, 2021.
Ingerski L, Loew M, Porter J, Su J, Zhang H, Hankins JS, Wang W. Use of Wise device technology to measure adherence to hydroxyurea therapy in youth with sickle cell disease. Journal of Pediatric Hematology/Oncology, 43:e19-e25, 2021.
Keenan ME, Loew M, Berlin KS, Hodges J, Alberts NM, Hankins JS, Porter JS**^. Empirically derived profiles of health-related quality of life in youth and young adults with sickle cell disease. Journal of Pediatric Psychology, 46:293-303, 2021.
Alberts NM, Badawy SM, Hodges J, Estepp JH, Nwosu C, Khan H, Smeltzer MP, Homayuni R, Norell S, Klesges L, Porter JS, Hankins JS. Development of the mobile app “InCharge Health” to improve adherence to hydroxyurea in sickle cell disease: A user-centered design approach. Journal of Medical Internet Research 8:e14884, 2020.
Ali J, Andrasik F, Berlin K, Porter J, Hankins J, Anderson S, Schreiber J. Attention difficulties are associated with lower engagement in adult care among youth with sickle cell disease. British Journal of Haematology 189:e1-e30, 2020.
Inusa BPD, Steward CE, Mathurin-Charles S, Porter J, Hsu LL, Atoyebi W, De Montalembert M, Diaku-Akinwumi I, Akinola NO, Andemariam B, Abboud MR, Treadwell M. Paediatric to adult transition care for patients with sickle cell disease: a global perspective. Lancet Haematology 7:e329-e341, 2020.
Partanen M, Kang G, Wang W, Krull K, King AA, Schreiber JE, Porter JS, Hodges J, Hankins JS, Jacola LM. Association between hydroxycarbamide exposure and neurocognitive function in adolescents with sickle cell disease. British Journal of Haematology 189:1192-1203, 2020.
Loew M, Williams JL, Russell K, Rupff R, Hankins JS, Porter JS. The adolescent and caregiver sickle cell disease self-management skills checklist: Preliminary reliability and validity. Journal of Pediatric Hematology/Oncology 42:12-19, 2020.
Saulsberry AC, Hodges JR, Cole A, Cole A, Porter JS, Hankins JS. Web-based technology to improve disease knowledge among adolescents with sickle cell disease: A pilot study. JMIR Pediatrics and Parenting 3:e15093, 2020.
Hodges J, Phillips S, Norell S, Nwosu C, Khan H, Luo L, Badawy S, King A, Tanabe P, Treadwell M, Rojas-Smith L, Calhoun C, Hankins S, Porter J. Intentional and unintentional nonadherence to hydroxyurea in sickle cell disease: A qualitative study. Blood Advances 4:4463-4473, 2020.
Dixon SB, Li N, Yasui Y, Bhatia S, Casillas JN, Gibson TM, Ness KK, Porter JS, Howell RM, Leisenring WM, Robison LL, Hudson MM, Krull KR, Armstrong GT. Racial and ethnic disparities in neurocognitive, emotional, and quality-of-life outcomes in survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. Cancer 125:3666-3677, 2019.
Saulsberry AC, Porter JS, Hankins JS. A program of transition to adult care for sickle cell disease. American Society of Hematology Education Program 2019:496-504, 2019.
Hankins J, Estepp J, Hodges J, Villavicencio M, Robison L, Weiss M, Kang G, Schreiber J, Porter J, Kaste S, Saving K, Bryant P, Deyo J, Nottage K, King A, Brandow A, Lebensburger J, Adesina B, Chou S, Zemel B, Smeltzer M, Wang W, Gurney J. Sickle Cell Clinical Research and Intervention Program (SCCRIP): A lifespan cohort study for sickle cell disease progression from pediatric into adulthood. Pediatric Blood & Cancer 65:e27228, 2018.
Nolan VG, Anderson SM, Smeltzer MP, Porter JS, Carroll YM, Brooks IM, Elmagboul N, Gurney JG, Hankins JS. Pediatric to adult care co-location transitional model for youth with sickle cell disease. American Journal of Hematology 93:E30-E32, 2018.
Porter JS, Wesley KM, Zhao MS, Rupff RJ, Hankins JS. Pediatric to adult care transition: Perspectives of young adults with sickle cell disease. Journal of Pediatric Psychology 42:1016-1027, 2017.
Ingerski LM, Arnold TL, Banks G, Porter JS, Wang WC. Clinic attendance of youth with sickle cell disease on hydroxyurea treatment. Journal of Pediatric Hematology/Oncology. Journal of Pediatric Hematology/Oncology 39:345-349, 2017.
Dallas RH, Loew MM, Wilkins ML, Sun Y, Tang L, Porter JS, Gaur AH. Body image and risk behaviors in youth with HIV. AIDS Patient Care and STDs 31:176-181, 2017.
Zhao MS, Johnson MR, Pullen AE, Russell KM, Wesley KM, Hankins JS, Porter JS. Assessment of personal medical history knowledge in adolescents with sickle cell disease: A pilot study. Journal of Clinical Outcomes Management 23:251-257, 2016.
Wilkins ML, Dallas RH, Porter JS, Tang L, Sun Y, Magdovitz-Frankfurt P, Gaur AH. Characterizing body image in youth with HIV. AIDS and Behavior 20:1585-1590, 2016.
Fair C, Cuttance J, Sharma N, Maslow G, Wiener L, Betz C, Porter J, McLaughlin S, Gilleland Marchak J, Renwick A, Nanjaro D, Jan S, Javalkar K, McManus M, White P, Ferris M. International and interdisciplinary identification of health care transition outcomes. JAMA Pediatrics 170:205-211, 2016.
Wesley KM, Zhao M, Carroll Y, Porter JS. Caregiver perspectives of stigma associated with sickle cell disease in adolescents. Journal of Pediatric Nursing 31:55-63, 2016.
Bryant R, Porter JS, Sobota A. APHON/ASPHO policy statement for the transition of patients with sickle cell disease from pediatric to adult health care. Journal of Pediatric Oncology Nursing 32:355-359, 2015.
Porter J, Carroll Y, Anderson S, Lavoie P, Hamilton L, Johnson M, Hankins J. Provider transition readiness assessment for sickle cell patients: A quality improvement project. Journal of Clinical Outcomes Management 21:263-269, 2014.
Porter JS, Matthews CS, Carroll YM, Anderson SM, Smeltzer MP, Hankins JS. Genetic information and sickle cell disease: Feasibility and efficacy of a program tailored to adolescents. Journal of Pediatric Hematology/Oncology 36:572-577, 2014.
Porter JS, Graff JC, Lopez A, Hankins JS. Transition from pediatric to adult care in sickle cell disease: Perspectives on the family role. Journal of Pediatric Nursing 29:158-167, 2014.
Porter JS, Stern M, Mazzeo SE, Evans RK, Laver J. Relations among teasing, body image, self-esteem and depression in treatment-seeking obese African American adolescents. Journal of Black Psychology 39:390-410, 2013
Graff JC, Hankins JS, Graves R, Robitaille K, Roberts R, Porter JS. Exploring family communication about sickle cell disease in adolescence. Journal of Pediatric Oncology Nursing 29:323-336, 2012.
Porter JS, Feinglass J, Artz N, Hafner J, Tanabe P. Sickle cell disease patients’ perceptions of pain management in the emergency department. Journal of the National Medical Association 104:449-454, 2012.
Tanabe P, Porter J, Creary M, Kirkwood E, Miller S, Ahmed-Williams E, Hassell K. A qualitative analysis of best self management practices: Sickle cell disease. Journal of the National Medical Association 102:1033-1041, 2010.
Porter JS, Bean MK, Gerke CK, Stern M. Psychosocial factors and perspectives on weight gain and barriers to weight loss among adolescents enrolled in obesity treatment. Journal of Clinical Psychology in Medical Settings 17:98-102, 2010.
Porter JS, Stern M. Prematurity stereotyping and perceived vulnerability at 5-months: Relations with mothers and their premature and full-term infants at 9-months. Journal of Reproductive and Infant Psychology 27:168-181, 2009.
Stern M, Mazzeo SE, Gerke CK, Porter JS, Bean MK, Laver JH. Gender, ethnicity, psychosocial factors and quality of life among participants in a multidisciplinary program targeting adolescent overweight. Journal of Pediatric Psychology 32:90-94, 2007.
Stern M, Mazzeo SE, Porter J, Gerke C, Bryan D, Laver J. Self-esteem, teasing and quality of life: African American adolescent girls participating in a family-based pediatric overweight intervention.Journal of Clinical Psychology in Medical Settings 13:217-228, 2006.
Wilson DB, Porter JS, Parker G, Kilpatrick J. Anthropometric changes using a walking intervention in African American breast cancer survivors: A pilot study. Preventing Chronic Disease 2(2), A16, 2005.
Last update: December 2022