
Katie Chinn Weyer is a math and science teacher as well as a track and cross-country coach. She enjoys spending time with her husband, Nick, and their sons, Ben (at left) and Jack.
Cured.
For someone with cancer, the word elicits images of exultation, relief and celebration. But for most childhood cancer survivors, “cure” is not the end of the journey.
When I completed Hodgkin lymphoma treatment at St. Jude Children’s Research Hospital, I thought, “This will be great! I’m done.”
Reality hit when I returned for follow-up appointments in the After Completion of Therapy Clinic. That’s when I truly comprehended the long-term side effects of the treatments that had saved my life. These include neuropathy; cold sensitivity; issues with my thyroid and esophagus; a high risk of breast cancer and heart problems; and poor lung function — an unwelcome surprise for a former competitive runner.
How would I maintain my health after leaving St. Jude?
Unfortunately, many clinicians don’t understand the health implications of childhood cancer treatments. St. Jude prepared a summary to explain the therapy I received and the tests I needed based on my risks. That survivorship plan is one of the most important documents I own because it helps me navigate the real world.
Sometimes health care providers would listen to me and follow the testing schedule; when I encountered those who would not comply, I learned to move on. With time and persistence, I assembled a health care team I trust.
Many people have said to me, “I had no idea that being a cancer survivor was so involved. I thought once you were done, you were done.”
As a result of those comments, I am motivated to spread the word: The long-term effects of cancer can be scary, but patients, providers and the public need to know about them and face them so that we can maintain survivorship.
Occasionally, people will say, “Oh, I bet you wish you had never had cancer.” Well, of course there would be parts I would change, but if I hadn’t had cancer, I wouldn’t know how great St. Jude is. I have many long-term effects of treatment, and they will always be a part of me. Yes, my cancer experience defined my life, but I wouldn’t change it — because it is my story.
From Promise, Summer 2021
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A Global View of ALL
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The 2022–27 St. Jude Strategic Plan: Accelerating Progress Globally
Learn how St. Jude can uniquely accelerate progress to advance cures, and means of prevention, for pediatric catastrophic diseases through fundamental science, global impact, and workforce and environment.
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von Hippel-Lindau: Focusing on an Invisible Foe
As a von Hippel-Lindau Clinical Care Center, St. Jude can focus the treatment experience for families affected by the rare genetic disorder.
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Sharing High-tech Tools with the World
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A Global View of ALL
St. Jude takes steps to improve the outlook for children with acute lymphoblastic leukemia in China and around the world.
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Treatment Refinements Offer Global Benefits
Results from clinical trials in Recife, Brazil, and Cairo, Egypt, offer hope to children in low- and middle-income countries worldwide.
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News & Highlights - Summer 2021
Explore some of the latest clinical and scientific research from St. Jude, including medulloblastoma, COVID-19 and data sharing.
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Something to Dance About: A Gentler Approach to Transplants
Using a gentler chemotherapy and radiation conditioning regimen, the Sickle Cell Disease Hematopoietic Cell Transplantation (SCDHCT) study aims to cure children with severe sickle cell disease and reduce side effects and subsequent health issues.
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The 2022–27 St. Jude Strategic Plan: Accelerating Progress Globally
Learn how St. Jude can uniquely accelerate progress to advance cures, and means of prevention, for pediatric catastrophic diseases through fundamental science, global impact, and workforce and environment.
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von Hippel-Lindau: Focusing on an Invisible Foe
As a von Hippel-Lindau Clinical Care Center, St. Jude can focus the treatment experience for families affected by the rare genetic disorder.